How to Discuss CF

Talking about problems and challenges can make them easier to handle. The same is true with CF. So reach out to the people in your life that have been touched by CF, whether you’re a teacher, a family member or a friend. If you have CF, you should talk to people about what it means.

Teacher

Most kids with CF are able to do most things you ask the other kids to do. They should be included in every activity they feel comfortable with and have discussed with their doctor. Ask your student and their parents if there are things you can do to make things easier. Some suggestions are:

• Give time during the school day for treatment

• Make a plan for homework or tutoring if the child is sick or in the hospital

• Change attendance rules

• Provide access to a private bathroom

• Waive rules regarding access to the bathroom or water

Your school can also provide an Individual Education Plan (IEP), which is part of the Individuals with Disabilities Education Act (IDEA), or you may need a 504 plan under section 504 of the Rehabilitation Act of 1973. These may help your student.

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Family

• You can help parents of kids with CF by listening, or even offering to babysit so caregivers can have some time to themselves

• If you're a sibling of a person with CF and you are having difficulty coping, it's important to talk about how you feel with a parent. Ask questions about CF so you understand what's happening

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Friends

• Friends of people dealing with CF can help by asking questions and being supportive.

• Volunteer to assist with a specific task and then be sure to follow through if you are able to

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