Videos and Webcasts
Watch these videos and webcasts to provide yourself with helpful information on living with CF. Be sure to visit this page in the future, too, as new videos are added regularly.
To find out more about the videos on this page, click on the photo or the title. You can also scroll down the page to reach them, too
CF: Accepting and Living Your Life with CF
BACK TO TOPTelling your friends or new acquaintances that you have CF can be difficult. Will it freak them out? Will they understand? These questions are totally normal and are important to think about, too. In this new 5-minute video, CF patients share their stories of accepting CF and overcoming their fears of opening up to others about their disease. We would love your feedback afterwards by filling out a brief survey.
How to Encourage Kids to Stick to Their CF Treatments
BACK TO TOPWe know that living with CF means fitting time-consuming treatments into your busy schedule. In this second video in this series, parents of CF kids discuss how they motivate their children with the power of choice. Plus, CF patients share how they manage to stay on top of treatments. Before the video begins, please answer 2 quick questions that will appear on your screen — and we would love your feedback afterwards with a brief survey.
Real-World Lessons on Coping with Your Child's CF
BACK TO TOPWe understand it can be very tough when you find out your child has CF. In this video, parents and experts share their personal journeys and provide tips on what has worked for them when navigating their lives with CF. Before the video begins, please answer 1 quick question that will appear on your screen, and then we would love your feedback afterwards with a brief survey.
Why Appearing Healthy Is Only Part of the Story
BACK TO TOPEstablishing an early CF management plan is important, even when no CF symptoms are present. In this webcast, Dr. Barbara Chatfield, MD, and Natalie Brown discuss why establishing a management plan is important from both the professional and parental perspectives. Dr. Chatfield is a pediatric pulmonologist and a professor of pediatrics at the University of Utah, and Natalie Brown is a mother of twins who were diagnosed with CF at birth.
You can follow along with the presentation with slides that are timed to correspond with the video.
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Living with CF
BACK TO TOPWe feel that hearing from doctors, parents, and patients who deal with CF provides information that others in similar situations may find helpful. In this webcast, Dr. Susanna McColley, MD, talks about various treatment options that are available for pediatric patients who have CF. Kelly Weber and her son, Jake, talk about the treatments that they use daily to take care of his CF. Dr. McColley is the director of the CF Center at Children's Memorial Hospital and associate professor of pediatrics at Northwestern University.
Indication and Usage
Daily administration of Pulmozyme® (dornase alfa) Inhalation Solution along with standard therapies is indicated in the management of cystic fibrosis patients to improve lung function. In patients with a forced vital capacity (volume of air exhaled with maximum effort and speed) greater than or equal to 40% of predicted, daily administration of Pulmozyme has also been shown to reduce the risk of respiratory tract infections requiring the administration of injectable antibiotics. In our pivotal study, safety and efficacy of daily administration has not been studied in patients beyond 12 months.
Important Safety Information
Pulmozyme should not be used in patients who are allergic to any of its ingredients
Pulmozyme should be used along with standard therapies for cystic fibrosis
When starting Pulmozyme therapy, patients may experience change in or loss of their voice, discomfort in the throat, chest pain, red watery eyes, rash, dizziness, fever, or runny nose
These side effects are usually mild and short-lived
The effect of Pulmozyme on exercise tolerance has not been established in adults and children
For further information, please see the Pulmozyme full prescribing information. If you have questions, please discuss them with your CF healthcare team.
