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Keeping Your Child Active
Kids and adults with CF don’t always have to be stuck on the sidelines. In fact, they should be encouraged to participate as long as they have discussed it with their doctor. Exercise can strengthen and clear lungs.
Here are just a few of the things exercise can do for your child:
Builds muscles and strong bones
Strengthens lungs
Helps clear lung mucus
Helps lower emotional stress
Encourage your child to join in the fun when they’re feeling up for it. Look for activities your child may enjoy that aren't necessarily sports, such as art, theater, or dance. Also, remember that children with CF lose more salt when they sweat and will need to replace it. Keep salty snacks nearby and encourage your child to take breaks for water or a hydrating sports drink.
Work with your CF Care Team and learn signs to look for that may mean it’s time to take a break from the action. Before starting any activity check in with your child's physician to see what is appropriate.
Indication and Usage
Daily administration of Pulmozyme® (dornase alfa) Inhalation Solution along with standard therapies is indicated in the management of cystic fibrosis patients to improve lung function. In patients with a forced vital capacity (volume of air exhaled with maximum effort and speed) greater than or equal to 40% of predicted, daily administration of Pulmozyme has also been shown to reduce the risk of respiratory tract infections requiring the administration of injectable antibiotics. In our pivotal study, safety and efficacy of daily administration has not been studied in patients beyond 12 months.
Important Safety Information
Pulmozyme should not be used in patients who are allergic to any of its ingredients
Pulmozyme should be used along with standard therapies for cystic fibrosis
When starting Pulmozyme therapy, patients may experience change in or loss of their voice, discomfort in the throat, chest pain, red watery eyes, rash, dizziness, fever, or runny nose
These side effects are usually mild and short-lived
The effect of Pulmozyme on exercise tolerance has not been established in adults and children
For further information, please see the Pulmozyme full prescribing information. If you have questions, please discuss them with your CF healthcare team.
