Videos and Webcasts
Watch these videos and webcasts to provide yourself with helpful information on living with CF. Be sure to visit this page in the future, too, as new videos are added regularly.
To find out more about the videos on this page, click on the photo or the title. You can also scroll down the page to reach them, too.
CF: Establishing Healthy CF Care HabitsBACK TO TOP
Having healthy CF habits is important for staying as healthy as possible. Managing your time can be hard but having a routine can help you stay on top of your treatments. In this new 5-minute video, hear from CF patients and caregivers who share tips on treatment schedules, good eating habits, and the importance of exercise. We would love your feedback afterwards by filling out a brief survey.
Why Appearing Healthy Is Only Part of the StoryBACK TO TOP
Establishing an early CF management plan is important, even when no CF symptoms are present. In this webcast, Dr. Barbara Chatfield, MD, and Natalie Brown discuss why establishing a management plan is important from both the professional and parental perspectives. Dr. Chatfield is a pediatric pulmonologist and a professor of pediatrics at the University of Utah, and Natalie Brown is a mother of twins who were diagnosed with CF at birth.
You can follow along with the presentation with slides that are timed to correspond with the video.
Living with CFBACK TO TOP
We feel that hearing from doctors, parents, and patients who deal with CF provides information that others in similar situations may find helpful. In this webcast, Dr. Susanna McColley, MD, talks about various treatment options that are available for pediatric patients who have CF. Kelly Weber and her son, Jake, talk about the treatments that they use daily to take care of his CF. Dr. McColley is the director of the CF Center at Children's Memorial Hospital and associate professor of pediatrics at Northwestern University.
Indication and Usage
Daily administration of Pulmozyme® (dornase alfa) Inhalation Solution along with standard therapies is indicated in the management of cystic fibrosis patients to improve lung function. In patients with a forced vital capacity (volume of air exhaled with maximum effort and speed) greater than or equal to 40% of predicted, daily administration of Pulmozyme has also been shown to reduce the risk of respiratory tract infections requiring the administration of injectable antibiotics. In our pivotal study, safety and efficacy of daily administration has not been studied in patients beyond 12 months.
Important Safety Information
Pulmozyme should not be used in patients who are allergic to any of its ingredients
Pulmozyme should be used along with standard therapies for cystic fibrosis
When starting Pulmozyme therapy, patients may experience change in or loss of their voice, discomfort in the throat, chest pain, red watery eyes, rash, dizziness, fever, or runny nose
These side effects are usually mild and short-lived
The effect of Pulmozyme on exercise tolerance has not been established in adults and children
For further information, please see the Pulmozyme full prescribing information. If you have questions, please discuss them with your CF healthcare team.