Videos and Webcasts

Watch the archived videos and webcasts below, and check back for new ones

Treatment Tip

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CF: Accepting and Living Your Life with CF

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Telling your friends or new acquaintances that you have CF can be difficult. Will it freak them out? Will they understand? These questions are totally normal and are important to think about, too. In this new 5-minute video, CF patients share their stories of accepting CF and overcoming their fears of opening up to others about their disease. We would love your feedback afterwards by filling out a brief survey.

Adapting to CF Normal

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Feeling normal while living with CF can sometimes seem impossible. It is important to know that you are not alone. Many people with CF struggle to find balance between living a "normal" life and maintaining good CF care. Check out this new 5 minute video where CF patients share their stories on how they have learned to adapt to their CF Normal. We would love your feedback afterwards by filling out a brief survey.

 

Managing Your Care as an Adult

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CF treatment administration changes as the patient gets older. In pediatric patients, parental involvement is important to manage a treatment plan, but adult patients have more responsibility to administer treatment on their own. In this webcast, Casey Flaherty talks about how she made the switch from pediatric to adult care. She talks with her mom and doctor about suggestions for taking care of CF as one becomes more independent.

 

Indication and Usage

Daily administration of Pulmozyme® (dornase alfa) Inhalation Solution along with standard therapies is indicated in the management of cystic fibrosis patients to improve lung function. In patients with a forced vital capacity (volume of air exhaled with maximum effort and speed) greater than or equal to 40% of predicted, daily administration of Pulmozyme has also been shown to reduce the risk of respiratory tract infections requiring the administration of injectable antibiotics. In our pivotal study, safety and efficacy of daily administration has not been studied in patients beyond 12 months.

Important Safety Information

  • Pulmozyme should not be used in patients who are allergic to any of its ingredients

  • Pulmozyme should be used along with standard therapies for cystic fibrosis

  • When starting Pulmozyme therapy, patients may experience change in or loss of their voice, discomfort in the throat, chest pain, red watery eyes, rash, dizziness, fever, or runny nose

  • These side effects are usually mild and short-lived

  • The effect of Pulmozyme on exercise tolerance has not been established in adults and children

For further information, please see the Pulmozyme full prescribing information. If you have questions, please discuss them with your CF healthcare team.